It’s been a while since I’ve made time to sit down and write another post but this just got me all excited this morning. Here is Camden this morning at his weekly Physical Therapy session learning to ride a bike. We have been struggling to get him to push his feet forward on the peddles
Tag: Road Less Traveled
A friend of mine posted this piece the other day on social media and I had to share. Once you land in ‘Holland’ it is truly amazing all of the special people you meet and reconnect with along your journey. This friend in particular, I happened to run into one day when I was with
There were a couple of months between our follow-up conversation with Mayo and our regularly scheduled Neurology and Genetic appointments at the University of Michigan. We continued on with Camden’s twice a week Speech and Occupational Therapy, once a week Physical Therapy and ECCS Preschool (4 days a week). In early January we were back up
On Monday November 6 at 5:15pm we had our video ‘appointment’ with Dr Renaud as a follow-up to our visit out at Mayo. We did our trial video appointment a few days prior to make sure everything was working properly so when this day came we would seamlessly slid right into our virtual appointment. Craig
After receiving the results of Camden’s MRI back in November of 2016 there was a lull in neurology and genetic visits. There was really no where to go from here, just wait and see how he progresses and develops. We stuck to our several therapy appointment per week schedule and waited. How could it be
On our last (retrospective) post we discussed the whole exome genetic testing that Dr. Innis had sent our bloodwork in for. At this time Camden was just shy of two and we had several months of waiting to get the results back. That time actually flew by quite quickly due to a lot of exciting
It has been a while since our last MacMillan update over on our previous blog….two and a half years. The last two and half years have been a long and winding road; one that is a little different from what most families experience with the addition of two children. Our journey has had us navigating