It’s been a while since I’ve made time to sit down and write another post but this just got me all excited this morning. Here is Camden this morning at his weekly Physical Therapy session learning to ride a bike. We have been struggling to get him to push his feet forward on the peddles
Author: Kara MacMillan
A friend of mine posted this piece the other day on social media and I had to share. Once you land in ‘Holland’ it is truly amazing all of the special people you meet and reconnect with along your journey. This friend in particular, I happened to run into one day when I was with
Time flies when you are a busy family of four. It seems like yesterday that we were bringing this little guy home from the hospital. A lot has changed in these two years. We were able to celebrate with our family a couple weekends ago with an all things transportation party. Crew is the best
There were a couple of months between our follow-up conversation with Mayo and our regularly scheduled Neurology and Genetic appointments at the University of Michigan. We continued on with Camden’s twice a week Speech and Occupational Therapy, once a week Physical Therapy and ECCS Preschool (4 days a week). In early January we were back up
On Monday November 6 at 5:15pm we had our video ‘appointment’ with Dr Renaud as a follow-up to our visit out at Mayo. We did our trial video appointment a few days prior to make sure everything was working properly so when this day came we would seamlessly slid right into our virtual appointment. Craig
On Sunday October 8th my parents came over to get Crew and to take the other 2 C’s and me to the airport. My Mom handed me something as we were getting ready to walk out the door and told me to place it in my wallet. It was a photo and emblem of Father
After receiving the results of Camden’s MRI back in November of 2016 there was a lull in neurology and genetic visits. There was really no where to go from here, just wait and see how he progresses and develops. We stuck to our several therapy appointment per week schedule and waited. How could it be
It wasn’t long after we received the genetic results when we were back in communication with Dr. Neil, Camden’s Neurologist. At this point Camden was two and a half years old and we still didn’t seem to have any answers. Camden had continued to progress, which is great, but he did so at a much
On our last (retrospective) post we discussed the whole exome genetic testing that Dr. Innis had sent our bloodwork in for. At this time Camden was just shy of two and we had several months of waiting to get the results back. That time actually flew by quite quickly due to a lot of exciting
This is what Santa looks like in Charleston, SC. Crew was very excited to see Santa. He pointed and waved at him 100 times from afar but once we got close he was a bit apprehensive. Camden was his usual happy go lucky self for the jolly man in red. Merry Christmas! Until next time,
MacMillan Family Life 